I
am a bereaved parent. My son died 4 months ago. I feel like
I'm going crazy.
Is this normal?
The
one term that we hear more than any other from bereaved
parents is exactly as you stated,
"I
feel like I'm going crazy!" When your child dies you
may experience many feelings and emotions that are unfamiliar.
Some
of the feelings that many people struggle with are: shock,
numbness, anxiety, fear, relief, emptiness, anger, yearning,
searching, and of course, overwhelming sadness. Rest assured
that all of these feelings are normal and might even be
considered healthy for a newly bereaved parent.
You
may also find that you are confused, forgetful, disorganised,
restless, exhausted, unable to concentrate and are becoming
socially isolated. Again, all of these are certainly common
occurrences when you are grieving.
Generally,
over time, you should find that many of these emotions and
feelings
will diminish somewhat. They will no longer make you feel
like you are "going crazy", but they will always
be with you to some extent. At times, often when you least
expect it, you may experience a sudden, intense resurgence
of these emotions. Often referred to as "grief attacks"
they can be frightening and overpowering. Again this is
a very normal reaction when a child dies.
C.W.
Lewis perhaps describes it best when he wrote in his book
a grief observed: "Grief is like a long, winding valley
where any bend may reveal a totally new landscape."
A couple that we are friendly with lost their six month
old baby recently. We would like to be supportive to them,
but the reality is that we are avoiding them because we
have no idea what to do or say. We feel terrible. Do you
have any suggestions that might help us?
These
common sense do's and don'ts are by no means complete but
hopefully they will give you the courage to reach out to
your friends at a time when your support and compassion
is needed most.
Do
- let your friends know that you are genuinely concerned
for and care about them. Don't - let your fear of doing
or saying the wrong thing stop you from reaching out to
them.
Do
- acknowledge the death of their child and also the depth
of their pain. Don't - say, "I know how you feel".
Even if you have lost a child yourself - do not presume
to know their pain.
Do
- apologize if you know you have said something insensitive
or inappropriate because of your own anxiety or fear. Don't
- be overly critical of yourself for this. Remember that
we are all human so go easy on yourself. You are trying
your best in very difficult circumstances.
Do
- let them tell you their story and talk about their child
as many times as they need to, listening is perhaps the
greatest gift you can give to them. Don't - say things like
"Life goes on"; "You have to get over this"
"It's been too long, you should be feeling better by
now". These types of statements will give them the
impression that you think they are somehow grieving "wrong",
with the result that they will no longer be comfortable
talking to you about their feelings. This makes what is
already an isolating experience even more isolating.
Do
- talk about positive and loving qualities of their child
and the relationship they had with them. Don't - change
the subject at the mention of the child's name or avoid
mentioning it out of fear of reminding them of their pain
(they haven't forgotten) and it keeps the child's memory
alive in a healthy way.
Do
- remember that nothing was worth the price these parents
paid when their child
died so - Don't - try to find something positive (e.g. A
moral/ethical lesson, helping some cause etc.) about the
child's death.
Do
- acknowledge that the child that they have lost can never
be replaced. Don't - tell them to be grateful for their
other children or that they can "always have another
child". Children are not interchangeable or replaceable
commodities. They are already grateful for any surviving
children that they may have in a way that many non-bereaved
parents will never fully appreciate.
Do
- remember that no matter how a child dies a parent will
almost always have
overwhelming feelings of guilt.
Don't - make any comments about the love or care the child
received from either parents or professionals that will
reinforce these feelings of guilt.
Do
- remember that certain dates (birthdays, anniversaries,
holidays, etc.) will be especially painful for them. Encourage
them not to expect too much of themselves. Try to call or
send a card on those occasions. Knowing that someone is
thinking about them will bring great comfort. Don't - tell
them what they should or should not be doing.
Do
- be available to help with practical matters, baby-sitting
other children, running errands, what ever seems to be needed
the most.
Don't - avoid seeing your friends - that only makes an already
unspeakably painful situation even worse.
Do
- pay special attention to any surviving siblings, they
too are grieving and need an opportunity to talk and be
comforted. Don't - tell them to be strong for their parents
or imply that they need to assume new roles in the family
to replace the lost sibling.
Do
- encourage the parents to attend a support group if this
is suitable for them. Remember that it takes great courage
to do this. Support groups allow them to meet, talk to and
share with others in similar circumstances. Don't - tell
them that attending a support group is a sign of weakness
or their own inability to cope with their grief.
Do
- respect their choice about whether or not to attend a
group. Don't - tell them that if they don't attend a support
group, they won't heal. Grief is a unique, individual journey
and not all people find groups helpful.
I am a nursing student hoping to work in labour and delivery
some day. I am having difficulty understanding what the
ethical/moral rights are of a parent/baby when a stillbirth
or neo-natal death takes place.
Although
these are not necessarily legal rights under the law it
would be comforting for families to feel that they have
privilege to the following:
Parents
have the right to the opportunity of seeing, holding, touching
and loving their child both before and after death. They
have the right to bond with and to name their child. They
have the right to take photographs and to retain mementoes
of their child.
They
have the right to be cared for by empathetic hospital staff;
to be allowed to be together during hospitalization and
to ask for and receive explanations of what to expect while
in hospital. They have the right to ask for an autopsy to
be performed.
They
have the right to observe their own cultural/religious practices
and to plan for their child's burial or cremation if desired.
They
have the right to be informed about the grieving process
and to feel and have acknowledged the intensity of their
loss and pain.
They
have the right to do whatever is right for them.
The
baby has the right to be recognised as a person who was
born and died. As such, the baby has the right to be named,
seen, touched, held and loved by its family. The baby has
the right to have its life ending acknowledged.
My friends seem to be giving me the message that, following
the death of my child, my goal should be to "get over"
my grief and get my life back to "normal". I have
no idea what "normal" is anymore. Is it possible
to "get over" this pain?
Today's
society is, on the whole, very uncomfortable with grieving
people. Most of the "helpful" advice given to
the bereaved encourages them to deal with their grief issues
as quickly as possible and move on. Shortly after the funeral
there is an expectation that the bereaved person will return
to "normal".
Many
people view grief as an event be dealt with quickly and
not a process that needs to be experienced. However it is
only through the experience of that process that healing
can begin.
Many
bereaved people are not given permission to mourn, express
their feelings, or verbalise what they are really thinking.
This makes grief a very isolating experience. They are afraid
that if they show their grief to an outside world they will
be perceived as being weak, or "stuck in their grief".
Being stoic and suppressing emotions are considered to be
more admirable qualities than tears and distress. When asked
how they are doing the bereaved often replies "I'm
fine" and this is a far easier response for most people
to hear as it avoids a conversation about their grief and
how they are coping. In other words, it is more socially
acceptable. However this does not meet the emotional needs
of the bereaved and they are often left feeling that their
reaction to the death of a loved one is abnormal.
The
expectation that you can "get over" your grief
is a ridiculous one. Death changes the person we once were
forever and we can never return to be that person again.
It is possible to heal, you will always carry the scars
of your loss, but to recover would mean to continue life
without those scars. To think that your goal is to completely
recover from your grief can be very damaging and destructive
to your healing process. With time, your pain will not be
as overwhelming as it is now, you will find a safe place
in your heart for it and you will find renewed purpose and
meaning in life once again.
My husband was recently been diagnosed with a terminal illness.
What can I do to help my children, age 6, 8 and 12 years,
during the very difficult times I am sure we will experience
after his death? They are very close to their father and
I am concerned about how they will be able to handle this
crisis.
Children
are often considered to be the "forgotten mourners"
and you are to be commended for your obvious concern and
support of them in what must be a devastating time in your
own life. Perhaps the most important advice that we can
offer is not to avoid the topic of their father's illness
and death.
Many
children suffer from a lack of understanding of death simply
because we, as adults, won't explain the facts to them in
age appropriate language. It is very important that communication
be kept open and honest. Explain what is happening, how
it is happening and what is going to happen next. Be truthful.
If you lie, they will eventually find out and this may affect
their ability to trust in the future. Refrain from using
euphemisms such as "He's gone to a better place".
Give
your children the chance to be involved with the rituals
of death. Encourage them to attend the funeral or burial
service. Explain why this event is important and inform
them of what they can expect to occur. Let them be involved
with the planning process if they seem interested.
Children
experience many of the same feelings and emotions after
the death of loved one that many adults do. You may have
to role model that it is okay for them to express those
feeling. Let them know that you are sad and that you miss
daddy too. Let them know that is okay to cry when they are
feeling sad and that their tears will not make you any sadder.
Be
available to your children to offer them whatever comfort
you can give them. Remember that they may be afraid that
they will lose you also and you may need to assure them
that you are not likely die too and that there will always
be someone to love and care for them. It is important for
them to understand that they are not responsible for their
father's death, that it was not caused by anything they
said, did or wished.
Make
sure that the school is notified of the death of their father.
Staff is often trained in giving support during bereavement
but it can only be made available if they are aware of the
circumstances. You might like to suggest that the teacher
speak to your child's class about what has happened before
your child returns to school.
Be
aware that a child's role in the family is often altered
after a parent dies. Try to avoid this happening. It would
be a great burden for one of your children to suddenly be
expected to assume the role of "man of the house".
Instead encourage them to maintain their familiar places
in the family and continue with the activities and friends
they had before their father died.
It
extremely important for the children to have someone they
trust to confide in. Someone who can address their concerns
and answer their questions. Children really need to be listened
to. Just like adults, they may need to talk about what happened
or what they are feeling over and over again. Be patient
with them and encourage them to remember all the happy,
joyful times they spent with their father not just the events
leading up to his death. When you have no words to offer
them, hug them. The physical reassurance of your love for
them will be especially important now.
No
matter how hard you try to support your children, you may
feel that your efforts are not helping enough. Remember
that you are also grieving and struggling with your own
loss. Consider seeking professional help if you have serious
concerns about your children. Support groups for grieving
children are extremely helpful even if your child appears
to be handling his or her grief appropriately. Many children
have difficulty speaking to their parent about how they
are feeling.
They
are frightened of making their parent feel worse than they
already do. Bereaved families of Ontario - Halton/Peel runs
support groups for children who have suffered the loss of
either a parent or a sibling. Here children have the opportunity
to meet and interact with peers who have also suffered to
the loss of someone significant. This helps to lessen their
feelings of isolation and lets them know that they are not
alone in their grief.
Finally,
try not to let their father's death overshadow every event
in their lives. Allow the children to shine in their own
right and to find joy in their lives again.
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